by Angela Renczarski about the author: Angela has a teenage son with Duchenne and an adult daughter. She’s happily engaged to a gentleman who also has Duchenne. She is a health coach and life coach in Kansas City. Angela can always be found driving Xavier around in the van and laughing at Ryan’s jokes. Love …
My Brother Is Different
by Marilyn Nieto about the author: Marilyn Nieto is the sister of Jhonny Nieto, and the daughter of Marisela Elvir & Anacleto Nieto. My Brother Is Different My younger brother has Duchenne Muscular Dystrophy. He was diagnosed when he was 6. I was 11. It was summer break. Little did I know how much would …
“Transformative” Medicine?
by Dr. Kathryn Wagner about the author: Dr. Kathryn Wagner is a clinician-scientist with over 20 years of caring for children and adults with neurological disease and directing clinical and translational research to develop novel therapies for these disabling and frequently fatal disorders. "Transformative" Medicine? Today I write not as an employee of a pharmaceutical …