There are some needs common to all humans: the need for community, the need for connection, the need for belonging. But with Duchenne, having those needs fulfilled can be quite challenging for many, if not all, individuals. In fact, for many individuals with Duchenne, the social aspects of the disease are the part they struggle […]
Many extended families and friends want to help their Duchenne families, but they just don’t know how. We would like to help bridge that gap. Below are over 50 ways that extended family and friends can help. From equipment to services, friendships, relationships, food, vehicles, academic support, there are many ways to help. Thank you […]
by Angela Renczarski about the author: Angela has a teenage son with Duchenne and an adult daughter. She’s happily engaged to a gentleman who also has Duchenne. She is a health coach and life coach in Kansas City. Angela can always be found driving Xavier around in the van and laughing at Ryan’s jokes. When […]
