About the author:
This article was written anonymously.
The Grief of a Grandparent
It’s hard to describe the grief of a grandparent. It’s different than the grief of the parents. One minute the world is perfect and then the dreaded phone call that changes life as you know it.
A New Reality
I have been blessed with 5 amazing grandchildren. Two boys and three girls.
Last year we found out our two sweet boys have DMD. To say I cried is an understatement. I recall going to sleep that night and waking up, thinking, “Oh gosh I just had the worst dream.”
It wasn’t a dream. It was our new reality.
They are only 6 and 3 and oh so happy. No clue about how hard life will be for them or the unsinkable bond they will have as brothers sharing this dreaded disease.
As the grandparents, the pain is different. You ache for your sweet boys and then you ache watching your children who are being so brave and strong all the while knowing their pain is beyond measure.
And you are helpless in so many ways. They live the day to day pain but as a grandparent you sit back and watch them and with each moment your heart breaks 1,000 times over. Helpless is an understatement.
All the while you don’t want to talk about it with your children as you know they need to just live day to day! With any conversation their pain is brought to the surface. So you don’t talk about it much.
I find that most people you mention it to just tell you it will be fine and not to worry and the reality is that you just can’t help it. Worry is all you do – day in and day out.
I try so hard to stay positive and hopeful that our lifetime will reveal a cure while maintaining a healthy dose of reality so you are not blindsided!
I try to be strong for everyone but it’s hard. Hard to know how much your children are hurting!
While a part of you wants to always be there to help another part of you secretly hopes you don’t live long enough to see any of them suffer.