Rare Disease Day is a day raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families, and their caregivers. Duchenne Muscular Dystrophy is a specific rare disease near and dear to our hearts.
Not only is Duchenne a progressive muscle-wasting disease, but individuals with Duchenne also frequently experience extreme social isolation, higher rates of mental health diagnoses, and significant obstacles to achieving life goals.
It takes a collaborative effort to ensure that significant change in our community becomes a reality and you can make a significant impact.
Please consider sharing our Rare Disease Day graphic (above) on your social media and include a sentence or two about how Duchenne affects your life. Please invite your family, friends, and colleagues to join us in supporting our community, raising awareness, and advocating.
Sending love to you and yours.
