Skip to content

 

Cart 0
  • Facebook
  • LinkedIn
  • Instagram
  • X
  • You Tube
Donate

 

Donate
  • Welcome
  • Individuals with Duchenne
    • Overview
    • Duchenne Muscular Dystrophy
      • Overview
      • Emotions & Behaviors
      • Physical Challenges
      • Social Challenges
      • Recent Research
      • Role of Caregiver
      • The Risk of Sexual Abuse
      • Consenting to Caregiving
      • Caregiver Collaboration – draft
    • Challenging Behaviors
      • Overview
      • 4 Contributing Factors
      • “I Wish They Understood…”
      • Mental Health Diagnoses
      • Situational Meltdowns
      • Spectrum of Behaviors
      • Ways to Support
        • Overview
        • Customize School
        • Encourage Independence
        • Highlight Accomplishments
        • Prioritize Mental Health
        • Provide Predictability
        • Recognize Overwhelm
        • Teach Life Skills
    • Common Experiences
      • Overview
      • Children
      • Adolescents
      • Adults
    • Connection & Belonging
      • Overview
      • Accepting Help
      • Intimacy & Relationships
      • Othered
      • Reciprocating
      • Friendship Skills & Duchenne
      • Self-Perception
      • Social Exclusion
      • Social Needs
    • Fundamental Life Skills
      • Overview
      • Building Medical Relationships
      • Cognitive Independence
      • Identity Formation
      • Physical Independence
      • Self-Advocacy
      • Social-Emotional Independence
    • Independence
      • Overview
      • Capable
      • Identity Formation
      • Interdependence
      • Life Skills
      • Self-Determination
      • Social-Emotional Independence
      • Ways to Support
    • Intimacy
      • Overview
      • Desire
      • Relationships
      • Sexual Development
      • Sexual Education
      • Transgender
      • Vulnerable
    • Mental Health
      • Overview
      • Common Diagnoses
      • Existential Distress
      • Physical Limitations
      • Self-Perception
      • Suicidal Ideation
      • When You Stop Walking…
        • Overview
        • Consult a Psychiatrist
    • Purpose
      • Overview
      • The Future?
      • Identity Formation
      • Role Models with Duchenne
      • Self-Determination
    • School
      • Overview
      • Cumulative Effect
      • Expected to Learn
      • Mental Health
      • Neurocognitive Demands
      • “Othered”
      • Physical Demands
      • Social Demands
      • Ways to Support
        • Overview
        • Acknowledge Disease Progression
        • Create a Connection
        • Customize the School Day
        • Establish Priorities
        • Notify Parents
        • Provide a One-to-One Aide
        • Select Teachers Thoughtfully
  • Family
    • Overview
    • Siblings
      • Overview
      • Maturity, Appreciation & Humor
      • Need for Information
      • One's Own Identity
      • Over-Identification & Isolation
      • Sole Survivor
      • Strengths
      • Tolerance & Advocacy
      • Vocation, Inspiration & Pride
      • Ways to Support
        • Overview
        • Ask Questions
        • Include the Siblings
        • Provide Opportunities for Play
        • Talk about Duchenne
        • Helping Kids (and Adults) Cope
    • Parents
      • Overview
      • Marriage & Divorce
      • Mental Health
      • Parenting
      • School Advocacy
      • A Village
      • Ways to Support
    • X-Linked
      • Overview
      • The Genetics
      • More Than Muscles
      • The Spectrum
      • Women with Duchenne
    • Family Unit
      • Overview
      • Change, Stress, and Coping
      • Relationships
      • Grief
      • Growth
      • Stress
      • Ways to Support
    • Bereaved
      • Overview
      • Before the Last Breath
      • After the Last Breath
        • That Fragile & Tender Space
      • Mental Health
      • Ways to Support
        • Overview
        • Be Involved
        • Build Communication
        • A Deep, Collective Sorrow
  • Friends
    • Overview
    • What Is Duchenne?
      • Overview
      • For Educators
      • For Kids
      • For Medical Professionals
      • For Physical Therapists
    • Social Tips
      • Overview
      • Adolescents & Community
      • Courage to Connect
      • A Duchenne-Friendly Visit
      • Equity, Equality & Duchenne
      • Eye Gaze Communication
      • Flying with DMD
      • Human Touch & Disability
      • The Need for Human Touch
      • Othered
      • Permission
      • Social Exclusion
      • Socializing & Lung Health
      • The Spectrum of Grief
      • Wasting Time
      • Wheelchairs & Social Life
      • Who Was There
      • *Treated Differently
      • disabilities & prejudice
      • Truba – effects of messages that society sends
      • Connected to Society
      • Rights for the Disabled in America
      • **Wheelchairs & Assumptions
      • Media & Stereotypes
    • 100+ Ways to Help
  • About Us
    • Welcome
    • Our Mission
    • For Our Community
      • Overview
      • DMD Discussions
      • Duchenne Stories
      • Legal Resources
      • Support Groups
      • The Duchenne Life Podcast
    • Get Involved
      • Overview
      • Donate
      • Fundraise
      • Shop
      • Volunteer
    • Contact Us
  1. Home
  2. /
  3. Our Mission

Facebook



Facebook Donations

  • Make a One-time Donation
  • Set Up a Recurring Donation 

Share

Quick Links

School

Challenging Behaviors

Supporting Siblings

Parent Mental Health

Ways to Help

Listen
    • The Duchenne Life
    • Fridays with Filis Law Firm
    • Mental Health Matters
    • Ask the PT
    • Webinars

Learn
  • Duchenne Stories
  • Legal Resources
Connect
  • Duchenne Discussions
  • Support Groups
  • Social Advocacy

Our Mission

Family, Friends and Duchenne educates and advocates for individuals with Duchenne, their families and friends. We also support our community during the daily challenges in our lives, from the childhood years through adulthood and beyond.

We encourage tough conversations that are integral to improving and supporting quality of life with DMD - conversations about explosive Duchenne behaviors, improving family dynamics, eliminating social isolation, supporting personal development, and ultimately achieving success in life's goals - all while navigating various levels of change, loss and grief.

2024 | Family, Friends and Duchenne | EIN# 88-4076721

What's on your mind?

Go back

Your message has been sent

Warning
Warning
Warning
Warning.

It's not what we have in life,

but rather who we have,

that really matters.

Individuals

Siblings

Parents

Bereaved

Friends

About Us

 

Loading Comments...