Unfortunately, there’s not a lot to say about the women who actually have Duchenne, mostly because not a lot is actually known.
Duchenne usually affects males but occasionally a female is diagnosed with DMD. It’s exceedingly rare but it does happen. Current statistics say a woman with Duchenne is 1 in 50 million.
One can assume many similarities between the genders, but the female body is clearly different from the male body. Our women with Duchenne need more scientific data and more support, too.
Our community has come far in understanding the experiences of carriers and Duchenne. We still have quite a ways to go.
Together as a community, we can do it. Sharing our stories will help.
