
New Resources Added Weekly
Learning About Duchenne
For Kids
For Adults
- Parent Project Muscular Dystrophy
- Duchenne World Organization’s Video Series
- Dusty’s Trail: Summit of Borneo
- A Life Worth Living: Pushing the Limits of Duchenne Muscular Dystrophy
For Physical Therapists
For Medical Professionals
- American Academy of Pediatrics – DMD continuing education series (12 webinars)
- PJ’s Protocol – Duchenne, Corticosteroids and Emergency Care
Silver Linings
- Powerchair Soccer and the Houston Fireballs
- Inclusive Books for Kids
- QJDMD Duchenne Rummy card game
- Tiff’s Place
- Wheels4lego
- AbleGamers
- Duchenne Siblings Support Network
- Team Joseph
- Greater than Grief: Two Brothers Against Duchenne
- Filis Law Firm
- Duchenne Muscular Dystrophy Awareness Group
- Duchenne Dad’s Chat
- Jett Porch Nite
- Dancing for Duchenne
- Life on Positivity – Life Coach, Dr. Ryan Russell
- Home Build and Modifications for Duchenne Muscular Dystrophy
Family Support
Sibling Support
- Duchenne Sibling Support Network
- The Sibling Support Project
- What About Me? The Story of the Other Sibling
- Heart Shaped Rocks, Don’t Die Without Me
- 5 things only siblings of a disabled person would know
Grief Support
- Family Grief: 5 Keys to Grieving Well Together
- 10 Ways to Support Your Grieving Loved One, by Megan Devine
- “Songs to Grieve By” playlist
- The Dougy Center
- Bo’s Place
- Clips from the Speaking Grief documentary