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  • Childhood
    • The Big Picture
      • Change & Stress
      • Common Patterns
      • DMD’s Impact on Families
      • Family Functioning
      • Grief, Loss & Growth
      • The Spectrum of Grief
      • The Stress of Clinical Trials
      • Wasting Time
    • Children
      • Challenging Behaviors
        • “I Wish They Understood…”
        • 4 Factors in Meltdowns
        • Holiday Meltdowns
        • Learning Life Skills
        • Mental Health Diagnoses
        • Not Just a Muscle Disease
        • Parenting the Whole Child
        • Positive Coping Skills
        • Processing Life with Play
        • Situational Meltdowns
        • Soothing the Anxiety
        • The Spectrum of Behaviors
        • Thriving on Predictability
      • Cultivating Independence
        • Building Medical Relationships
        • Encouraging Independence
        • Interdependence
        • Learning Life Skills
        • Redefining Independence
        • Self-determination
      • School
        • Challenges of School
        • Equity vs. Equality
        • Learning Life Skills
        • Mental Health Diagnoses
        • Minimizing Meltdowns
        • School Setting Demands
        • Thriving with Routines
    • Siblings
      • 7 Ways to Support Siblings
      • Overidentifing & Isolation
      • Positive Coping Skills
      • Processing Life With Play
      • Sibling Inclusion
      • Talking with Siblings
      • The Need for Information
      • The Sole Surviving Member
    • Parents
      • Going Solo
      • Grief & Change
        • A Deep, Collective Sorrow
        • The Spectrum of Grief
        • When You Don’t Feel Grateful
      • Marriage
        • Changing Yourself
        • Changing the Conversations
        • Patterns in Marriage
        • Patterns for Spouses
      • Mental Health
        • Both/And in Duchenne
        • Control & Duchenne
        • Depression & Anxiety
        • Establishing Support
        • Psychiatry Benefits
        • Stress Impacts
      • Parenting
        • Mental Health
        • Family Functioning
        • Parenting the Whole Child
        • The Most Important Thing
        • Transgender with Duchenne
    • Childhood Stories
  • Adolescence
    • The Big Picture
      • Change & Stress
      • DMD’s Impact on Families
      • Family Functioning
      • Grief, Loss & Growth
      • The Spectrum of Grief
      • The Stress of Clinical Trials
      • Wasting Time
    • Adolescents
      • Independence
        • Building Medical Relationships
        • Challenges in Healthcare
        • Equipment Access
        • Encouraging Independence
        • Identity Formation
        • Interdependence
        • Learning Life Skills
        • Redefining Independence
        • When You Stop Walking…
      • Intimacy & Relationships
        • Building Relationships
        • Desire
        • Discussing Sex in the Clinic
        • Give & Take in Relationships
        • Inadequate Sexual Education
        • Puberty & Sexual Curiosity
        • Transgender Advice
      • Mental Health
        • 4 Factors in Meltdowns
        • Guilt & Duchenne
        • Mental Health Diagnoses
        • Our Social Needs
        • Parenting the Whole Child
        • Role Models with Duchenne
        • Suicidal Ideation
        • The Future?
        • The Spectrum of Behaviors
        • Thriving with Routines
        • The Toll DMD Takes
        • We Adapt
        • When You Stop Walking
        • When You Don’t Feel Grateful
      • Social Life
        • Adolescence Interrupted
        • Adolescents & Community
        • Barriers to Inclusion
        • Equity vs. Equality
        • Friendship Challenges
        • Give & Take in Friendships
        • Learning Life Skills
        • Social Life & the Powerchair
        • The Need for Human Touch
        • When You Stop Walking
    • Siblings
      • 7 Ways to Support Siblings
      • Sibling Inclusion
      • Talking with Siblings
      • The Need for Information
      • The Sole Surviving Member
    • Parents
      • Going Solo
      • Grief & Change
        • A Deep, Collective Sorrow
        • “Both/And” in Duchenne
        • The Spectrum of Grief
        • When You Don’t Feel Grateful
      • Marriage
        • Common Marriage Patterns
        • Common Individual Patterns
      • Mental Health
        • Control & Duchenne
        • Establishing Support
        • Stress Impacts
      • Parenting
        • Family Functioning
        • Parenting the Whole Child
        • Transgender with Duchenne
    • Adolescence Stories
  • Adulthood
    • The Big Picture
      • Building Medical Relationships
      • Change & Stress
      • DMD’s Impact on Families
      • Family Functioning
      • The Spectrum of Grief
      • Wasting Time
    • Adults
      • Intimacy & Relationships
        • Desire
        • Discussing Sex in the Clinical Setting
        • Give & Take in Relationships
        • Inadequate Sexual Education
        • Interdependence
        • Meaningful Relationships
        • Married with Duchenne
        • Pathfinders & Intimacy
        • Puberty & Sexual Curiosity
        • Relationship Barriers
        • Romantic Relationships
        • The Marriage Penalty
        • Transgender Advice
      • Mental Health
        • “Both/And” in Duchenne
        • Existential Stress & Distress
        • Elephants in the Room
        • Guilt & Shame
        • Interdependence
        • Our Social Needs
        • Role Models with Duchenne
        • Routines in Duchenne
        • Suicidal Ideation
        • The Future?
        • The Guilt that Comes
        • The Toll DMD Takes
        • We Adapt
        • When You Don’t Feel Grateful
      • Physical Health
        • Adult Care Challenges
        • Aging Child, Aging Parents
        • A Right, Not a Dream
        • If I Outlive My Parents
        • Interdependence
        • No Means No
      • Social Life
        • Common Social Barriers
        • Eye Gaze Communication
        • Friendship Challenges
        • Give & Take in Friendships
        • Holidays with Duchenne
        • I Am More Than A Chair
        • Relationships Shape Us
        • The Need for Human Touch
    • Siblings
      • Sibling Inclusion
      • Talking with Siblings
      • The Need for Information
      • The Sole Surviving Member
      • Ways to Support Siblings
    • Parents
      • Going Solo
      • Grief & Change
        • A Deep, Collective Sorrow
        • The Spectrum of Grief
        • When You’re Not Feeling Grateful
      • Marriage
        • Common Individual Patterns
        • Common Marriage Patterns
      • Mental Health
        • Control & Duchenne
        • Establishing Support
        • Stress Impacts
      • Parenting
        • Family Functioning
        • Transgender with Duchenne
    • Adulthood Stories
  • X-linked
    • The Big Picture
      • A Woman with Duchenne
      • Building Medical Relationships
      • Grief & Change
        • When You Don’t Feel Grateful
      • Medical Incompetence
      • Wasting Time
    • The Female Faces
      • Daughters
        • My Daughter Is a Carrier
      • Mothers
      • Grandmothers
    • X-linked Stories
  • Bereavement
    • The Spectrum of Grief
      • When You Don’t Feel Grateful
    • Before Goodbye
      • There All Along
      • Wasting Time
      • What is Hospice
    • After the Last Breath
      • 7 Ways to Help
      • A Deep, Collective Sorrow
      • That Fragile & Tender Space
    • Bereavement Stories
      • A Sister’s Goodbye
      • The Sole Surviving Member
      • Your Loving Brother, Karan
  • Help for DMD Families
    • 100+ Ways to Help
      • 7 Ways to Support Siblings
      • Adolescents & Community
      • DMD Medical Language
      • Establishing Support
      • Helping Bereaved Families
      • The Spectrum of Grief
    • DMD Discussions
      • DJ Kimble
      • Jacob Gapko
      • Joeanne Smith
      • John Buchbach
      • Oli Groom
      • Ryan Russell
    • Duchenne Stories
      • Community Stories
      • Ricky Tsang’s “Inspirational”
    • Explaining Duchenne
      • World Duchenne Org Videos
      • Inclusive Books for Kids
      • For Adults
      • For Physical Therapists
      • For Physicians
      • The Language of Duchenne
      • BrainPop Video
    • Livestreams & Podcasts
      • The Duchenne Life
      • Podcast
    • Medicaid Waivers
    • Social Tips
      • 100+ Ways To Help
      • A Duchenne-Friendly Visit
      • Stress & Physical Limits
      • Equity vs. Equality
      • Flying with DMD
      • Inclusive Books for Kids
      • Kids Have Questions, Too
      • Not Just a Muscle Disease
      • Socializing & Lung Health
      • The Best Switch Games
      • The Language of Duchenne
      • The Need for Human Touch
      • The Wheelchair & Social Life
      • Thriving on Predictability
    • Support Groups
      • Mondays: Bereaved Parents
      • Tuesdays: for Everyone
      • Wednesdays: Grandparents
      • Sabados: en Espanol
      • Facebook Groups

Supporting the Family

  • 100+ Ways to Support the Duchenne Family
  • The Medical Language of Duchenne
  • The Spectrum of Grief in Duchenne

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