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What Is Duchenne Muscular Dystrophy?
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Childhood
The Big Picture
Change & Stress
Common Patterns
DMD’s Impact on Families
Family Functioning
Grief, Loss & Growth
The Spectrum of Grief
The Stress of Clinical Trials
Wasting Time
Children
Challenging Behaviors
“I Wish They Understood…”
4 Factors in Meltdowns
Holiday Meltdowns
Learning Life Skills
Mental Health Diagnoses
Not Just a Muscle Disease
Parenting the Whole Child
Positive Coping Skills
Processing Life with Play
Situational Meltdowns
Soothing the Anxiety
The Spectrum of Behaviors
Thriving on Predictability
Cultivating Independence
Building Medical Relationships
Encouraging Independence
Interdependence
Learning Life Skills
Redefining Independence
Self-determination
School
Challenges of School
Equity vs. Equality
Learning Life Skills
Mental Health Diagnoses
Minimizing Meltdowns
School Setting Demands
Thriving with Routines
Siblings
7 Ways to Support Siblings
Overidentifing & Isolation
Positive Coping Skills
Processing Life With Play
Sibling Inclusion
Talking with Siblings
The Need for Information
The Sole Surviving Member
Parents
Going Solo
Grief & Change
A Deep, Collective Sorrow
The Spectrum of Grief
When You Don’t Feel Grateful
Marriage
Changing Yourself
Changing the Conversations
Patterns in Marriage
Patterns for Spouses
Mental Health
Both/And in Duchenne
Control & Duchenne
Depression & Anxiety
Establishing Support
Psychiatry Benefits
Stress Impacts
Parenting
Mental Health
Family Functioning
Parenting the Whole Child
The Most Important Thing
Transgender with Duchenne
Childhood Stories
Adolescence
The Big Picture
Change & Stress
DMD’s Impact on Families
Family Functioning
Grief, Loss & Growth
The Spectrum of Grief
The Stress of Clinical Trials
Wasting Time
Adolescents
Independence
Building Medical Relationships
Challenges in Healthcare
Equipment Access
Encouraging Independence
Identity Formation
Interdependence
Learning Life Skills
Redefining Independence
When You Stop Walking…
Intimacy & Relationships
Building Relationships
Desire
Discussing Sex in the Clinic
Give & Take in Relationships
Inadequate Sexual Education
Puberty & Sexual Curiosity
Transgender Advice
Mental Health
4 Factors in Meltdowns
Guilt & Duchenne
Mental Health Diagnoses
Our Social Needs
Parenting the Whole Child
Role Models with Duchenne
Suicidal Ideation
The Future?
The Spectrum of Behaviors
Thriving with Routines
The Toll DMD Takes
We Adapt
When You Stop Walking
When You Don’t Feel Grateful
Social Life
Adolescence Interrupted
Adolescents & Community
Barriers to Inclusion
Equity vs. Equality
Friendship Challenges
Give & Take in Friendships
Learning Life Skills
Social Life & the Powerchair
The Need for Human Touch
When You Stop Walking
Siblings
7 Ways to Support Siblings
Sibling Inclusion
Talking with Siblings
The Need for Information
The Sole Surviving Member
Parents
Going Solo
Grief & Change
A Deep, Collective Sorrow
“Both/And” in Duchenne
The Spectrum of Grief
When You Don’t Feel Grateful
Marriage
Common Marriage Patterns
Common Individual Patterns
Mental Health
Control & Duchenne
Establishing Support
Stress Impacts
Parenting
Family Functioning
Parenting the Whole Child
Transgender with Duchenne
Adolescence Stories
Adulthood
The Big Picture
Building Medical Relationships
Change & Stress
DMD’s Impact on Families
Family Functioning
The Spectrum of Grief
Wasting Time
Adults
Intimacy & Relationships
Desire
Discussing Sex in the Clinical Setting
Give & Take in Relationships
Inadequate Sexual Education
Interdependence
Meaningful Relationships
Married with Duchenne
Pathfinders & Intimacy
Puberty & Sexual Curiosity
Relationship Barriers
Romantic Relationships
The Marriage Penalty
Transgender Advice
Mental Health
“Both/And” in Duchenne
Existential Stress & Distress
Elephants in the Room
Guilt & Shame
Interdependence
Our Social Needs
Role Models with Duchenne
Routines in Duchenne
Suicidal Ideation
The Future?
The Guilt that Comes
The Toll DMD Takes
We Adapt
When You Don’t Feel Grateful
Physical Health
Adult Care Challenges
Aging Child, Aging Parents
A Right, Not a Dream
If I Outlive My Parents
Interdependence
No Means No
Social Life
Common Social Barriers
Eye Gaze Communication
Friendship Challenges
Give & Take in Friendships
Holidays with Duchenne
I Am More Than A Chair
Relationships Shape Us
The Need for Human Touch
Siblings
Sibling Inclusion
Talking with Siblings
The Need for Information
The Sole Surviving Member
Ways to Support Siblings
Parents
Going Solo
Grief & Change
A Deep, Collective Sorrow
The Spectrum of Grief
When You’re Not Feeling Grateful
Marriage
Common Individual Patterns
Common Marriage Patterns
Mental Health
Control & Duchenne
Establishing Support
Stress Impacts
Parenting
Family Functioning
Transgender with Duchenne
Adulthood Stories
X-linked
The Big Picture
A Woman with Duchenne
Building Medical Relationships
Grief & Change
When You Don’t Feel Grateful
Medical Incompetence
Wasting Time
The Female Faces
Daughters
My Daughter Is a Carrier
Mothers
Grandmothers
X-linked Stories
Bereavement
The Spectrum of Grief
When You Don’t Feel Grateful
Before Goodbye
There All Along
Wasting Time
What is Hospice
After the Last Breath
7 Ways to Help
A Deep, Collective Sorrow
That Fragile & Tender Space
Bereavement Stories
A Sister’s Goodbye
The Sole Surviving Member
Your Loving Brother, Karan
Help for DMD Families
100+ Ways to Help
7 Ways to Support Siblings
Adolescents & Community
DMD Medical Language
Establishing Support
Helping Bereaved Families
The Spectrum of Grief
DMD Discussions
DJ Kimble
Jacob Gapko
Joeanne Smith
John Buchbach
Oli Groom
Ryan Russell
Duchenne Stories
Community Stories
Ricky Tsang’s “Inspirational”
Explaining Duchenne
World Duchenne Org Videos
Inclusive Books for Kids
For Adults
For Physical Therapists
For Physicians
The Language of Duchenne
BrainPop Video
Livestreams & Podcasts
The Duchenne Life
Podcast
Medicaid Waivers
Social Tips
100+ Ways To Help
A Duchenne-Friendly Visit
Stress & Physical Limits
Equity vs. Equality
Flying with DMD
Inclusive Books for Kids
Kids Have Questions, Too
Not Just a Muscle Disease
Socializing & Lung Health
The Best Switch Games
The Language of Duchenne
The Need for Human Touch
The Wheelchair & Social Life
Thriving on Predictability
Support Groups
Mondays: Bereaved Parents
Tuesdays: for Everyone
Wednesdays: Grandparents
Sabados: en Espanol
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