“Duchenne is as much a blessing as it is a curse. You have to look at the positive. You have a chance to learn things and help people in ways few others can. Live and love to the fullest.” -Ryan Russell, PhD
Ryan Russell
Personal Experiences
– 41 years old with Duchenne
– youngest of 6 children
– parents passed away in 2021
Education, Work & Volunteering
– attended public school through high school
– M.Ed Counseling and Human Relations
– PhD in Psychology
– Ambassador for Jett Foundation
– Director of Family Life at Family, Friends and Duchenne
Medical Experiences
– powerchair use
– non-invasive ventilation
– paid caregivers
Romantic Relationships
– happily in love with his girlfriend