“Duchenne is part of who I am but not the defining characteristic of my life. Every cloud has a silver lining.” -Jacob Gapko
Jacob Gapko
Personal Experiences
– 46 years old with Duchenne
– oldest of two brothers with Duchenne
– younger brother passed away in 2006
Medical Experiences
– powerchair use
– sip and puff ventilation
– chronic kidney stones & frequent ER visits
– paid caregivers & parents are caregivers
Education, Work & Volunteering
– attended public school through high school
– masters in library science
– church
– Chief Information Officer at Family, Friends and Duchenne
Romantic Relationships
– happily in love with his girlfriend of 3 years
click here for Jacob’s autobiography
