DMD Discussions – Oli Groom

“Duchenne is currently incurable but knowledge is the next best thing.” – Oli Groom

Oli Groom

Personal Experiences 

  • 31 years old with Duchenne 
  • lives independently in New Zealand 
  • isolation 
  • depression 

Medical Experiences 

  • power wheelchair 
  • non-invasive ventilation

Education, Work and Volunteering 

  • high school with NECA level 3
  • self-taught music production skills
  • mental health and addictions certificate 
  • certified life coach 
  • employing and managing care providers

Romantic Relationships 

  • single

read Oli’s autobiography here