
“Each day is a gift, never take a single minute for granted” – Mariah Wright
Mariah Graves Wright
Personal Experiences
- youngest sister to 2 brothers with Duchenne
- adopted into the family as an infant
- is the sole survivor in her nuclear family
- mother of 2 adult children
Family’s Duchenne Medical
- powerchair use
- sip and puff ventilation
- chronic kidney stones
- parents are caregivers
- mother had cardiac complications, likely carrier
Education, work & volunteering
- FFD
Romantic Relationships:
– happily married for _____