DMD Discussions – Mariah Wright

“Each day is a gift, never take a single minute for granted” – Mariah Wright

Mariah Graves Wright

Personal Experiences

  • youngest sister to 2 brothers with Duchenne
  • adopted into the family as an infant
  • is the sole survivor in her nuclear family
  • mother of 2 adult children

Family’s Duchenne Medical

  • powerchair use
  • sip and puff ventilation
  • chronic kidney stones
  • parents are caregivers
  • mother had cardiac complications, likely carrier

Education, work & volunteering

  • FFD

Romantic Relationships:

– happily married for _____

read Mariah’s autobiography here