The Big Picture During Bereavement

Forever with Us

There is so much valuable information to share about relationship patterns, support for and inclusion of parents and families when they lose a family member to Duchenne. Thank you for your patience as we work diligently to complete this section.

Some of the topics we’ll discuss are:

  • Grief, what it is, how long it lasts
  • Common challenges in friendships and relationships and ways to help
  • How family dynamics change, including impacts on the siblings and the parents
  • Mental health for the whole family
  • Ways to support and include the family

Until then, we invite you to visit us on social media, where we already have a plethora of information. If you have specific questions, please email us at